With so many new diagnostic tests currently available, and increasing opportunities to improve patient outcomes through access to clinical trials, it is timely for Australia and New Zealand to establish a collaborative neuromuscular network. The diagnosis, treatment and prevention of neuromuscular disorders in Australasia will benefit considerably from a more coordinated and integrated approach to improving care, increasing innovation and decreasing cost. Such a Network will also increase our ability to provide advocacy for these rare and complex disorders, guiding best practice in their diagnosis and management and driving improved and equitable access to services.
Currently, there is no standardised national approach to diagnosis and management of neuromuscular disorders. The ANN is committed to providing a forum to advance and disseminate information, being a single voice to advocate for patients, guiding best practice in diagnosis, care and treatment and promoting and facilitating research. It is only through working together can make a difference.
So far the ANN has over 270 members – our aim is to be a coordinated and integrated forum to advance and disseminate information, being a single voice to advocate for our patients and guiding best practice in diagnosis, care and treatment and to promoting and facilitating research.
The ANN aims to establish an effective communication network to ensure that our patients, regardless of where they live, have access to excellent care. As this evolves, we welcome your comments. Please feel free to contact Prof Alastair Corbett (Co-Chair of the Clinical Care Steering Group – Adults) or Dr Kristi Jones (Co-Chair – Paediatrics).