Call for patients

Please also visit our active research collaborations page for more opportunities for you and your patients to participate in research studies.


Understanding patients’ and carers’ decision making in Spinal Muscular Atrophy care

Associate Professor Michelle Farrar and colleagues from Sydney Children’s Hospital (Randwick) are conducting a new research project to learn more about what factors are important when making decisions related to treatment for spinal muscular atrophy (SMA).

They are seeking the views of parents/carers of people with SMA, health care providers and the wider community.

Please find attached more information about this project and the link to the survey.

We thank you for your consideration of this important study.