Home
About ANN
Background to the ANN
Goals
1 Year & 5 Year Goals
Focus Areas
Diagnostic Network
Goals
Clinical Care Network
Goals
Allied Health and Nursing Alliance (AHNA)
Clinical Trials
Goals
Research
Advocacy
Executive
Partnerships
Research
Annual scientific report 2013
Annual Scientific Report 2012
Call for patients: highlighted research projects
Research collaborations
Resources for Families
Screen Positive
From Screening to Diagnosis
Medications and Outcomes
Your Healthcare Team
For Family and Friends
Support and Information
Resources for Health Professionals
Training
Tools
CMTPedS Calculator
Charcot-Marie-Tooth: why feet matter. A resource for allied health professionals
Standards of Care
Duchenne muscular dystrophy
Spinal muscular atrophy
Facioscapulohumeral muscular dystrophy
Congenital muscular dystrophy
Guidelines
Specimen Collection
Duchenne/Becker muscular dystrophy
Limb girdle muscular dystrophies
Scoliosis in neuromuscular disorders
Muscular dystrophy (emergency response)
Guidelines in development
Allied Health and Nursing Alliance (AHNA)
Neuromuscular gene tests
Patient Registries
Australian Registry: Duchenne muscular dystrophy
Australian Registry: FKRP mutation
Australian Registry: Spinal Muscular Atrophy
New Zealand DMD Registry
New Zealand SMA Registry
International Registry: Congenital muscular dystrophy
Registries coming soon!
Useful links
ANN Congress
ANN Congress 2026
ANN Congress 2025
ANN Congress 2024
Members
Notice of AGM 2026
Minutes of the ANN Inc. AGM 2025
Rules of the ANN Inc. (2025)
Historical Documents
Membership Renewal
Contact
Home
About ANN
Background to the ANN
Goals
1 Year & 5 Year Goals
Focus Areas
Diagnostic Network
Goals
Clinical Care Network
Goals
Allied Health and Nursing Alliance (AHNA)
Clinical Trials
Goals
Research
Advocacy
Executive
Partnerships
Research
Annual scientific report 2013
Annual Scientific Report 2012
Call for patients: highlighted research projects
Research collaborations
Resources for Families
Screen Positive
From Screening to Diagnosis
Medications and Outcomes
Your Healthcare Team
For Family and Friends
Support and Information
Resources for Health Professionals
Training
Tools
CMTPedS Calculator
Charcot-Marie-Tooth: why feet matter. A resource for allied health professionals
Standards of Care
Duchenne muscular dystrophy
Spinal muscular atrophy
Facioscapulohumeral muscular dystrophy
Congenital muscular dystrophy
Guidelines
Specimen Collection
Duchenne/Becker muscular dystrophy
Limb girdle muscular dystrophies
Scoliosis in neuromuscular disorders
Muscular dystrophy (emergency response)
Guidelines in development
Allied Health and Nursing Alliance (AHNA)
Neuromuscular gene tests
Patient Registries
Australian Registry: Duchenne muscular dystrophy
Australian Registry: FKRP mutation
Australian Registry: Spinal Muscular Atrophy
New Zealand DMD Registry
New Zealand SMA Registry
International Registry: Congenital muscular dystrophy
Registries coming soon!
Useful links
ANN Congress
ANN Congress 2026
ANN Congress 2025
ANN Congress 2024
Members
Notice of AGM 2026
Minutes of the ANN Inc. AGM 2025
Rules of the ANN Inc. (2025)
Historical Documents
Membership Renewal
Contact
Educational Resources for Parents and Families
Download Booklet
Spinal Muscular Atrophy (SMA)
Learn More
Newborn Screening Results
Learn More
Screening to Diagnosis
Learn More
Medications and Outcomes
Learn More
The Healthcare Team
Learn More
For Family and Friends
Learn More
Support and Information
Learn More
