Non-myotonic dystrophy
To participate in this study, contact: Merrilee Needham
Research site: Royal North Shore Hospital, Sydney
In collaboration with Frank Mastaglia and Chris Blundell, WA
Necrotizing autoimmune myopathy (NAM) is a treatable disease – patients respond to immunosuppressive agents such as prednisone.
Statins have been associated with necrotising myopathies and is strengthened by the discovery that the serum of some patients contains an anti-HMGCR antibody.
Patients on statins with necrotising myopathy are needed for further studies in this area.
- Longitudinal studies – registries
- Management of cardiac complications
- Cognitive impairment
- Management of fatigue and sleep disturbance
- Susceptibility to infection